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Vol. 27 No. 1 (2022)

November 2022

Sharing health data to create value: A systematic review

  • Mojtaba Zonoobi
  • Shaban Elahi
  • Mohammad Khansari
  • Alireza Hassanzadeh
  • Tahereh Sahib

Researcher Bulletin of Medical Sciences, Vol. 27 No. 1 (2022), 20 November 2022 , Page e9
Published: 2024-03-18

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Abstract

Objective: With the introduction of digital crypto currency, the worth of data has been obvious to everybody. Of course, this research is in the sphere of medicine. The goal of this research is to perform a comprehensive evaluation of studies in the area of health information system data sharing and secondary uses of health data, with the goal of generating value in multiple dimensions by sharing these data.

Material & Methods: The researchers used the intelligent Web of science and IEEE search engines to conduct a systematic evaluation of English-language keyword searches. Two tactics have been studied in this respect, one using keywords related to "health data value" and the other using terms linked to "health data sharing."

Results: Although several studies have suggested solutions for decreasing obstacles to health information system data sharing, they have often simply addressed the problem, according to one criticism of the papers examined. The sharing barrier has no remedy, and its relevance is simply emphasized.

Conclusion: It was discovered that not all of the successful components of data sharing, particularly data from health information systems, were addressed in the evaluated studies.

 

Keywords:
  • Health data; Data value; Data value creation;Data sharing

How to Cite

Zonoobi, M., Elahi, S., Khansari, M., Hassanzadeh, A., & Sahib, T. (2024). Sharing health data to create value: A systematic review. Researcher Bulletin of Medical Sciences, 27(1), e9. Retrieved from https://ojs2.sbmu.ac.ir/index.php/rbms/article/view/44910
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References

Abedjan, Z., Boujemaa, N., Campbell, S., Casla, P., Chatterjea, S., Consoli, S., … Garattini, C. (2019). Data Science in Healthcare: Benefits, Challenges and Opportunities. In Data Science for Healthcare (pp. 3–38). Springer.

Cavanillas, J. M., Curry, E., & Wahlster, W. (2016). New horizons for a data-driven economy: a roadmap for usage and exploitation of big data in Europe. Springer.

Cohen, J., Coleman, E., medical, M. K.-I. journal of, & 2016, undefined. (n.d.). An importance-performance analysis of hospital information system attributes: A nurses’ perspective. Elsevier. Retrieved from https://www.sciencedirect.com/science/article/pii/S1386505615300526

Dai, L., Gao, X., Guo, Y., Xiao, J., & Zhang, Z. (2012). Bioinformatics clouds for big data manipulation. Biology Direct, 7. https://doi.org/10.1186/1745-6150-7-43

European Nucleotide Archive. European Nucleotide Archive Browser. (2019). European Nucleotide Archive. European Nucleotide. Retrieved from https://www.ebi.ac.uk/ena/browser/home

Faria, P. de, Pública, J. C.-R. P. de S., & 2014, undefined. (n.d.). Health data privacy and confidentiality rights: Crisis or redemption? Elsevier. Retrieved from https://www.sciencedirect.com/science/article/pii/S0870902514000352

Gruendner, J., Schwachhofer, T., Sippl, P., Wolf, N., Erpenbeck, M., Gulden, C., … Toddenroth, D. (2019). Ketos: Clinical decision support and machine learning as a service – A training and deployment platform based on Docker, OMOP-CDM, and FHIR Web Services. PLoS ONE, 14(10), 1–16. https://doi.org/10.1371/journal.pone.0223010

Haskel, J., & Westlake, S. (2018). Capitalism without Capital. Capitalism without Capital. https://doi.org/10.1515/9781400888320/HTML

Hawkins, R. (2015). Marianna Mazzucato The Entrepreneurial State: Debunking Public vs Private Sector Myths. Retrieved from https://academic.oup.com/spp/article-abstract/42/1/143/1640202

Health Information: Management of a Strategic Resource - Google Scholar. (n.d.). Retrieved December 26, 2021, from https://scholar.google.com/scholar?hl=en&as_sdt=0%2C5&q=Health+Information%3A+Management+of+a+Strategic+Resource&btnG=

Hsueh, P.-Y. P.-Y., Cheung, Y.-K. Y.-K., Dey, S., Kim, K. K., Martin-Sanchez, F. J., Petersen, S. K., & Wetter, T. (2017). Added value from secondary use of person generated health data in consumer health informatics. Yearbook of Medical Informatics, 26(01), 160–171. https://doi.org/10.15265/IY-2017-009

Iyamu, T., & Mgudlwa, S. (2018). Transformation of healthcare big data through the lens of actor network theory. International Journal of Healthcare Management, 11(3), 182–192. https://doi.org/10.1080/20479700.2017.1397340

Jothi, N., science, W. H.-P. computer, & 2015, undefined. (n.d.). Data mining in healthcare–a review. Elsevier. Retrieved from https://www.sciencedirect.com/science/article/pii/S1877050915036066

Kankanhalli, A., Hahn, J., Tan, S., & Gao, G. (2016a). Big data and analytics in healthcare: Introduction to the special section. Information Systems Frontiers, 18(2), 233–235. https://doi.org/10.1007/s10796-016-9641-2

Kankanhalli, A., Hahn, J., Tan, S., & Gao, G. (2016b). Big data and analytics in healthcare: Introduction to the special section. Information Systems Frontiers, 18(2), 233–235. https://doi.org/10.1007/s10796-016-9641-2

Larson, D. B., Magnus, D. C., Lungren, M. P., Shah, N. H., & Langlotz, C. P. (2020). Ethics of using and sharing clinical imaging data for artificial intelligence: A proposed framework. Radiology, 295(3), 675–682. https://doi.org/10.1148/radiol.2020192536

London, D. of H. & S. C. T. N. C. for E. (2015). Department of Health & Social Care. The NHS Constitution for England. London: Department of Health & Social Care. Retrieved from https://www.gov.uk/government/publications/the-nhs-constitution-for-england/the-nhs-constitution-for-england

Miller, E., Politics, D. W.-J. of H., and, P., & 2009, undefined. (2000). Where’s the revolution? Digital technology and health care in the internet age. Read.Dukeupress.Edu, 34(2). https://doi.org/10.1215/03616878-2008-046

Mustafa, A., Computers, M. R. A.-, & 2021, undefined. (2021). Automated Machine Learning for Healthcare and Clinical Notes Analysis. Mdpi.Com. https://doi.org/10.3390/computers10020024

Ojo, A., Government, S. A.-G. 3. 0–Nex. G., & 2017, undefined. (2017). Blockchain as a next generation government information infrastructure: A review of initiatives in D5 countries. Springer, 32, 283–298. https://doi.org/10.1007/978-3-319-63743-3_11

Penn, L., Goffe, L., Haste, A., & Moffatt, S. (2019). Management information systems for community based interventions to improve health: Qualitative study of stakeholder perspectives. BMC Public Health, 19(1). https://doi.org/10.1186/S12889-018-6363-Z

Pressman, R. (2005). Software engineering: a practitioner’s approach. Retrieved from https://books.google.com/books?hl=en&lr=&id=bL7QZHtWvaUC&oi=fnd&pg=PR30&dq=Pressman+RS.+Software+engineering:+a+practitioner%27s+approach:+Palgrave+Macmillan%3B+2005.&ots=O8x79VsJ3e&sig=A_-FzlsIJTwHuBVewJn_bbF64GU

Review, Y. B.-T. U. of C. L., & 2013, undefined. (n.d.). Commons and growth: The essential role of open commons in market economies. JSTOR. Retrieved from https://www.jstor.org/stable/23594886

Sadiq, S., Management, M. I.-I. J. of I., & 2017, undefined. (n.d.). Open data: Quality over quantity. Elsevier. Retrieved from https://www.sciencedirect.com/science/article/pii/S0268401216309021

Schoen, C., Osborn, R., How, S. K. H., Doty, M. M., & Peugh, J. (2009). In chronic condition: Experiences of patients with complex health care needs, in eight countries, 2008. Health Affairs, 28(1). https://doi.org/10.1377/HLTHAFF.28.1.W1

Shen, Y., Guo, B., Shen, Y., Duan, X., Dong, X., & Zhang, H. (2016). A pricing model for Big Personal Data. Tsinghua Science and Technology, 21(5), 482–490. https://doi.org/10.1109/TST.2016.7590317

Shortliffe, E., Shortliffe, E., Cimino, J., & Cimino, J. (2014). Biomedical informatics: computer applications in health care and biomedicine. Retrieved from https://link.springer.com/content/pdf/10.1007/978-1-4471-4474-8.pdf

Staccini, P., medical, L. F.-L.-Y. of, & 2015, undefined. (2015). Health Social Media and Patient-Centered Care: Buzz or Evidence? Thieme-Connect.Com, 10(1), 160–163. https://doi.org/10.15265/IY-2015-032

Van Panhuis, W. G., Paul, P., Emerson, C., Grefenstette, J., Wilder, R., Herbst, A. J., … Burke, D. S. (2014). A systematic review of barriers to data sharing in public health. BMC Public Health, 14(1), 1–9. https://doi.org/10.1186/1471-2458-14-1144

Wang, L., Laszewski, G. Von, Younge, A., … X. H.-N. generation, & 2010, undefined. (n.d.). Cloud computing: a perspective study. Springer. Retrieved from https://link.springer.com/article/10.1007/s00354-008-0081-5

Wilson, J., Herron, D., Nachev, P., McNally, N., Williams, B., & Rees, G. (2020). The Value of Data: Applying a Public Value Model to the English National Health Service. J Med Internet Res 2020;22(3):E15816 https://www.Jmir.Org/2020/3/E15816, 22(3), e15816. https://doi.org/10.2196/15816

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